Parkinson’s disease affects everyone differently, and every situation is unique. The type and severity of your symptoms, and the kind of work you do, will impact whether you are still going strong 20 years after your diagnosis, or if you are unable to continue in your career after just a couple years. In general, most people can expect to be able to work for several years before Parkinson’s substantially interferes with their ability to do their job.

Deciding when to talk to your employer can be tough. A lot depends on your relationship with your supervisor and your position within the company, but it’s usually better to have the conversation before your work quality begins to suffer so that smaller, more manageable accommodations can be made to make the transition smoother. Consulting resources in advance, such as the Americans with Disabilities Act (ADA) to find what accommodations are most applicable to your situation, can be extremely helpful to start the discussion. And be prepared to educate your supervisor and colleagues about your individual symptoms and how Parkinson’s affects your daily life, so that everyone understands your situation and your capabilities. In the unfortunate instance where you experience conflict with your employer, it’s always a good idea to consult with an attorney so that you know your rights.

If you’re unable to continue working, explore options for early retirement, standard retirement, medical benefits, or accessing retirement savings plans. Consult with a financial advisor to be aware of potential penalties or taxes.

The ADA provides job protections for those with advanced Parkinson’s, which is recognized as a disability. However, not every person with Parkinson’s will meet the standards. To benefit from ADA protections, you must disclose your disability and request reasonable accommodations to maintain job performance.

Understanding your rights and seeking support early can make a significant difference in managing Parkinson’s over the long term.